Sunday

kelly is doing OK. She is in no pain but her weight is now 100 lbs. They give her NO fluids and I mean no iv fluids either. She as in her body has to stay dry so the lungs stay dry. Yes she is so thirsty. We let her put a wet cloth in her mouth then she suctions it out. She was doing so wonderful yesterday then today her co2 went us and she is so short of breath that she could not walk and her heart rate is 140 when she tries to walk and that is making her dizzy. She is stuck betweet a rock and a hard place. Her co2 is up and without putting her on the bypap you have to walk to get rid of it and when she walks she panrs because she is sob and that builds up her co2. So they ended up putting her back on the bypap for awhile. Tomorrow she is getting a feeding tube into her tummy. That will be the first nourishment she has had since last Monday.Keep praying. Love to all.

Merry Christmas Eve

Kelly had her transplant Tuesday morning for all those who or whom did not know. 11 hrs of surgery. They called us Monday night at 5pm and told us it was a go at midnight. They started at 3pm.She is doing GREAT. She is terribbly sore but they keep the pain under control.They have 12 tubes coming out of her chest and that is what hurts more than the incisions I am told. keep those prayersup. Merry Christmas. We have our present.

Friday

Well this afternoon Joe and I where in a caregivers meeting when I get a phone call that they HAVE listed Kelly. Yes you read right. Now we wait and your jobs are to pray harder.xxxooo

Sad Wed

No list this week. It is not for a medical reason but now they want Joe and I to go to some transplant classes. Why can't we go while she is in the hospital???The Dr. said that he was pretty sure that they will list her next week. That means there will just be 2 classes that we can go to. That make a lot od sense doesn't it???????????

Dec 17

Well today may be the day. We go see a dietician at 1 then x rays then labs then the Doctor. He had better not want anymore test over again. We had an appt yesterday for 1 test he wanted over again and they forgot to put it on the books.They told us the time but forgot to put it down.So say a prayer and cross everything. I shall let yall know. xxxooo, V

Sat.

haven't written lately becaue nothing is going on. Monday we shall be at the hospital all day running test and seeing Drs. Tuesday 1 Dr appt and Wed we see the Big Kahuna and prayfully he will put her on the list then.
Went to the Dollar tree because we decided we needed some decorations and it made me cry. I miss home especially at Christmas. Christmas music makes me so sad. Oh well there is always next year. Love to all, V

Tuesday Dec 9

Went to the hospital yesterday at 8 and got home at 5. one test was 3 hrs then at the Doctors at 1 they called us at 2 and then we met with the transplant coordinator.
They may decide today if they will put her on the list or not. We met with the surgeon yesterday. He said that he is very good at wheat he does but he has NEVER done a transplant where someone had the problems kelly has so he could not tell us how it will come out. he said that her quality of living may not be as she knows it. She may not be able to talk very well or walk or understand very well and her memory may be effected. I said Or it may not right he says Yes it may not that they do not know. They do not know if the transplant will lat 2 days or 20 years. Kelly is quite upset but she is calmer now. I pray they decide to put her on the list and no more test.

Thursday Dec 4

Went to see the Pulmonary Dr. yesterday. We were under the impression that he was going to list her yesterday. Instead he tell us that the surgeon wants to meet Kelly because he said on paper Kelly sounds too bad for a transplant but when you see her you see a whole different story. Now they also want to run more test.So it will be another 2 weeks before they list her. The Dr. told us that they have NEVER done this kind of a transplant before meaning someone with all the problems Kelly has and that they do not know what will happen. Of course kelly cried all the way home becsue he told us they did not know if she would make it through the operation or if she did what her life expectancy would be. Monday the surgeon we go see will be very blunt and tell it like it is. I expect more depression and Kelly would tell them no operation but she has already been told that if they do not do the operation then she dies so now if they decide to turn her down she knows what to expect.

Nov 24

Kels did her swallow study again and they said it looked loke some liquid could but has not go into the lungs so she has to remain on thick liquids. She has to put this thick up stuff in everything she drinks and make it thick.She started rehab today and I was there when this gentleman walks up and tells us he remember us and that he had a lung transplant Oct.28 He waited 1 month and he looks fantastic I mean I was shocked.I hope we do not have to wait that long.

Happy Birthday to Micah

Happy Birthday to Micah
Happy Birthday to Micah
Happy Birthday to you. We all Love you. Stay sweet. And give that beautiful Amber a big o hug.

Happy Thursday

Kels is back at the apt and loving it. it was so hetci getting everything set up. The hospital gave out the wrong apt number and everything was delivered to the wrong place. But in the end it was straightened out. We have an appt at 5 today at the rehab center. i am telling you with out our TomTom we would be lost.

hello from not home. Kels is doing so much better. They told us yesterday she may be released later on this week and go back to our apartment then start rehab to get stronger and then be listed. We hate it here. HATE and I hate nothing but hate is my choice of words.

Good morning.Kelly is in her private room. She gets depressed so easily. They tried to walk her and no matter what her heart says her legs say differently. She was very eager but too wooblely. Is that a word??Then her heart rate would go up way too high.I am telling you people that we do not like it here at all. The people (most not all) are cold. The Drs. are almighty and now 1 dr. says that kels may not get on the list because of this illness then the coordinator says that is bull. That is what makes her and us depressed. She did get to talk to people yesterday on the phone. It was my baby brothers birthday. Happy B day Jerry and marty. Not twins marty was jerrys birthday present one yr.

Kelly is doing so much better . She did start having some seizures and she was thinking things that where not happening but more meds helped that. Today they may move her to a regular room and then start more rehab. We have not heard from the transplant yet today.xxxooo

Kelly is looking so much better. The nurse said that being on a vent she is in the 1% range for people doing so well. Tomorrow we may know more.

well Kelly is finally on the right road. they plan and hope to take the vent out this weekend or Mon and hopefully she can breath on her own. The Transplant coordinator came to see us yesterday and she was shocked that kelly was fully awake and playing games. They hope to get her in a room rehab her then list her that is probably going to happen over a 1 month period. that is the plan for now. yesterday they sit her up on the side of the bed for the first rime in 10 days and they hope to walk her some today. They tell us 99% of the people who they have on vents are asleep this whole time. Pray that vent comes out soon.xxxooo

they tell us kelly is not getting much better.we feel they are wrong. they are as of right now going to leave the vent in till tues then i do not know. she is watching tv sching tv and doing word find books. they tell us she is highly malnourished. Joe said feed her more or get that thingout of her throat so she can eat. not to many friendly people.

Kelly is not feeling well today. threw up 2 times this morn man that is hard with tubes in your mouth.The Dr told us it would be awhile before she was well enough for a transplant if she ever was or if she ever left this room. I personally feel he is wrong. I know her better than he does and she is a fighter and I feel she could get up now if they would unhook everything.

hello from the V

i do not have a lot of time to write. i guess by now everyone knows what happened on the way here. kelly still has all the tubes in her nose and mouth. day by day is what the dr. says.she is getting better but they have to have her the ststus she was before she got sick. that may take a while. this place is expensive. $10 a day to park. you have no choice because there is no street parking. Cafeteria is expensive as is ours at home. well Joe is ready to leave but I shall return when possible. Love to all, V

Hello Everyone

I need to know if this is right or not???