Nov 24

Kels did her swallow study again and they said it looked loke some liquid could but has not go into the lungs so she has to remain on thick liquids. She has to put this thick up stuff in everything she drinks and make it thick.She started rehab today and I was there when this gentleman walks up and tells us he remember us and that he had a lung transplant Oct.28 He waited 1 month and he looks fantastic I mean I was shocked.I hope we do not have to wait that long.

Happy Birthday to Micah

Happy Birthday to Micah
Happy Birthday to Micah
Happy Birthday to you. We all Love you. Stay sweet. And give that beautiful Amber a big o hug.

Happy Thursday

Kels is back at the apt and loving it. it was so hetci getting everything set up. The hospital gave out the wrong apt number and everything was delivered to the wrong place. But in the end it was straightened out. We have an appt at 5 today at the rehab center. i am telling you with out our TomTom we would be lost.

hello from not home. Kels is doing so much better. They told us yesterday she may be released later on this week and go back to our apartment then start rehab to get stronger and then be listed. We hate it here. HATE and I hate nothing but hate is my choice of words.

Good morning.Kelly is in her private room. She gets depressed so easily. They tried to walk her and no matter what her heart says her legs say differently. She was very eager but too wooblely. Is that a word??Then her heart rate would go up way too high.I am telling you people that we do not like it here at all. The people (most not all) are cold. The Drs. are almighty and now 1 dr. says that kels may not get on the list because of this illness then the coordinator says that is bull. That is what makes her and us depressed. She did get to talk to people yesterday on the phone. It was my baby brothers birthday. Happy B day Jerry and marty. Not twins marty was jerrys birthday present one yr.

Kelly is doing so much better . She did start having some seizures and she was thinking things that where not happening but more meds helped that. Today they may move her to a regular room and then start more rehab. We have not heard from the transplant yet today.xxxooo

Kelly is looking so much better. The nurse said that being on a vent she is in the 1% range for people doing so well. Tomorrow we may know more.

well Kelly is finally on the right road. they plan and hope to take the vent out this weekend or Mon and hopefully she can breath on her own. The Transplant coordinator came to see us yesterday and she was shocked that kelly was fully awake and playing games. They hope to get her in a room rehab her then list her that is probably going to happen over a 1 month period. that is the plan for now. yesterday they sit her up on the side of the bed for the first rime in 10 days and they hope to walk her some today. They tell us 99% of the people who they have on vents are asleep this whole time. Pray that vent comes out soon.xxxooo

they tell us kelly is not getting much better.we feel they are wrong. they are as of right now going to leave the vent in till tues then i do not know. she is watching tv sching tv and doing word find books. they tell us she is highly malnourished. Joe said feed her more or get that thingout of her throat so she can eat. not to many friendly people.

Kelly is not feeling well today. threw up 2 times this morn man that is hard with tubes in your mouth.The Dr told us it would be awhile before she was well enough for a transplant if she ever was or if she ever left this room. I personally feel he is wrong. I know her better than he does and she is a fighter and I feel she could get up now if they would unhook everything.

hello from the V

i do not have a lot of time to write. i guess by now everyone knows what happened on the way here. kelly still has all the tubes in her nose and mouth. day by day is what the dr. says.she is getting better but they have to have her the ststus she was before she got sick. that may take a while. this place is expensive. $10 a day to park. you have no choice because there is no street parking. Cafeteria is expensive as is ours at home. well Joe is ready to leave but I shall return when possible. Love to all, V