Sunday

kelly is doing OK. She is in no pain but her weight is now 100 lbs. They give her NO fluids and I mean no iv fluids either. She as in her body has to stay dry so the lungs stay dry. Yes she is so thirsty. We let her put a wet cloth in her mouth then she suctions it out. She was doing so wonderful yesterday then today her co2 went us and she is so short of breath that she could not walk and her heart rate is 140 when she tries to walk and that is making her dizzy. She is stuck betweet a rock and a hard place. Her co2 is up and without putting her on the bypap you have to walk to get rid of it and when she walks she panrs because she is sob and that builds up her co2. So they ended up putting her back on the bypap for awhile. Tomorrow she is getting a feeding tube into her tummy. That will be the first nourishment she has had since last Monday.Keep praying. Love to all.

Merry Christmas Eve

Kelly had her transplant Tuesday morning for all those who or whom did not know. 11 hrs of surgery. They called us Monday night at 5pm and told us it was a go at midnight. They started at 3pm.She is doing GREAT. She is terribbly sore but they keep the pain under control.They have 12 tubes coming out of her chest and that is what hurts more than the incisions I am told. keep those prayersup. Merry Christmas. We have our present.

Friday

Well this afternoon Joe and I where in a caregivers meeting when I get a phone call that they HAVE listed Kelly. Yes you read right. Now we wait and your jobs are to pray harder.xxxooo

Sad Wed

No list this week. It is not for a medical reason but now they want Joe and I to go to some transplant classes. Why can't we go while she is in the hospital???The Dr. said that he was pretty sure that they will list her next week. That means there will just be 2 classes that we can go to. That make a lot od sense doesn't it???????????

Dec 17

Well today may be the day. We go see a dietician at 1 then x rays then labs then the Doctor. He had better not want anymore test over again. We had an appt yesterday for 1 test he wanted over again and they forgot to put it on the books.They told us the time but forgot to put it down.So say a prayer and cross everything. I shall let yall know. xxxooo, V

Sat.

haven't written lately becaue nothing is going on. Monday we shall be at the hospital all day running test and seeing Drs. Tuesday 1 Dr appt and Wed we see the Big Kahuna and prayfully he will put her on the list then.
Went to the Dollar tree because we decided we needed some decorations and it made me cry. I miss home especially at Christmas. Christmas music makes me so sad. Oh well there is always next year. Love to all, V

Tuesday Dec 9

Went to the hospital yesterday at 8 and got home at 5. one test was 3 hrs then at the Doctors at 1 they called us at 2 and then we met with the transplant coordinator.
They may decide today if they will put her on the list or not. We met with the surgeon yesterday. He said that he is very good at wheat he does but he has NEVER done a transplant where someone had the problems kelly has so he could not tell us how it will come out. he said that her quality of living may not be as she knows it. She may not be able to talk very well or walk or understand very well and her memory may be effected. I said Or it may not right he says Yes it may not that they do not know. They do not know if the transplant will lat 2 days or 20 years. Kelly is quite upset but she is calmer now. I pray they decide to put her on the list and no more test.

Thursday Dec 4

Went to see the Pulmonary Dr. yesterday. We were under the impression that he was going to list her yesterday. Instead he tell us that the surgeon wants to meet Kelly because he said on paper Kelly sounds too bad for a transplant but when you see her you see a whole different story. Now they also want to run more test.So it will be another 2 weeks before they list her. The Dr. told us that they have NEVER done this kind of a transplant before meaning someone with all the problems Kelly has and that they do not know what will happen. Of course kelly cried all the way home becsue he told us they did not know if she would make it through the operation or if she did what her life expectancy would be. Monday the surgeon we go see will be very blunt and tell it like it is. I expect more depression and Kelly would tell them no operation but she has already been told that if they do not do the operation then she dies so now if they decide to turn her down she knows what to expect.