Sharon

Got your package and thank you so much. How kind of you.Kelly loves the word finds and Joe loves tout that. hat Suduko thingy. It makes me batty.
Kelly is doing well. We did not get to go to rehab today because she woke up really sick to her tummy. I called the coordinator and left a voice mail which my call is important to them(NOT) and they will return it in 2 to 3 hrs. Well i called back at 12 and now it is 3 and still nothing. Thay are starting to get on my nerves.See this is how they all do. Wed the Dr. said kelly is doing well and she can take the swallow study feb 4 but he may not let her drink even if she passes. Well we will see about that.No one else at rehab has had to wait this long. She may need thickened drinks but that would be ok also.

Tuesday in NC

Things are going ok. Rehab everyday which is ok with all of us.Tomorrow we go to labs at 10 then x ray then blood gases then PFT's which is testing to see how much her lungs can blow. Then rehab at 12;30 then the Doc at 4. What a shame we cannot go out to eat afterward but since kelly cannot eat that would be cruel so Joe and I wait till she goes to rehab and we went out and got a good burger. We have not been sneaking out but thought of it yesterday. Joe felt too guilty but the guilts have not hit me yet. Since i am the caregiver I need to keep up my strength. In actuality I could life a happy life on the food that is already stored.xxxooo

Happy Obama day

Snowing like crazy here. These people do NOT know how to drive on snow. There have been at least 30 wrecks on the Interstate this morning. Slow down IDIOTS.
Kelly is looking like 6 o'clock straight up and down. What a little toothpick. We shall fatten her up as soon as she can eat and drink which they say they will test her in 2 weeks but I have been throwing a fit but no one listens to me I guess I am not mean enough. I need Donna or Les they take NO crap from no one. Well I need Renae also because she takes NO crap from anyone either.We go at 8 tomorrow for lab work then to rehab. That will be 1 day out of 23 so the count down is on.

Kelly has left the hospital. We left Friday night at 6. It was suppose to have been 1 but foul ups but we made it.So many meds and tube feedings. This morning I was completely overwhelmed for awhile then we got our act together and now we are on tract. She still cannot eat or drink. We think they are being too cautious. kelly looks so weak even though they are doing tube feedings for all the nourishments they say she needs.We do not know how she is possibly (possibbly) exercise in this shape. We are going to try asking again this week. All the poor baby can think of is food. Joe and I are closet eaters now.

Well today things look better than yesterday. Kellys co2 is down to 64 and they want it in the 60's to leave the hospital and her diaphragm is working. Things are looking wonderful for the time being.GO CATS.

Hello from Dukieville

Well people the powers that B says we have to stay till Friday anyway because they want her co2 level down some more even though her surgeon told us she could leave with it high his partner over ruled him and said he wants it lower. The guy is a butt hole excuse my French. He really is a butt sometimes. He has the God attitude.

Kelly Update

People we are out of here Wed. Can you believe it. 3 weeks and 1 day. Then we go to the center for Living (Rehab) for 23 sessions which is 1 month 1 week and 1 week of clinics then Homeward Bound.YEAH.

Sat

The Docs say we should be out of here sometimes next week.Kels is doing great.We have been warned that things can change. She has to go for a ct this morning because of a lump in her tummy but they think that has to do with the feeding tube.
I shall return. P S Joe is not driving me crazy YET.

Thursday

First of all I want to say Thank you so very much to Sharon my cuz for the special card and yes a hug does help.
Kelly got all but 2 small tubes out of her today the remaining tubes will stay in place till we leave.She is feeling well and walking a lot but still gets short of breath. That is so discourageing to still have to wear oxygen but they all assure me that it will get better.
I just heard that they may have our discharge day for the 12th. YEAH. That was a maybe and not written in stone.

Tuesday

Nothing much happening today. Kelly is sleeping a lot. We are out of the ICU and now she is trying to catch up on sleep. She is no better than she was actually. Her diaphram(sp) still has not kicked in so she can take a deep breath. She is on 1/2 to 1 liter of o2.Her co2 is still high.They assure us that her body will realize that it can breath on its own but it has been 2 weeks and nothing positive.No drinking or eating yet.

Jan 2

Good days and small glitch days. Last weekend my daughter Mischelle and 3 of my brothers came to NC. I enjoyed them so very much.Kelly had a good last weekend then she got to not feeling well. Her co2 stays high and they cannot get it down and one the the dr. said she may leave the hospital with a high co2 because that is the way her body is use to it. Her diaphram(sp) is not working at all so they say they hope it is the shock of the surgery and that it will recover.As of now she cannot take deep breaths so they still have her on 1 liter of o2.
She is walking but her legs are so weak. Wednesday she weighed 88 lbs.I sure pray these Docs know what they are doing.